Information for patients and their relatives about useful agencies, services, and support options

If you have more up-to-date information (e.g., addresses, telephone numbers, new self-help groups, etc.), we would be very grateful if you would send it to us for the benefit of other affected individuals.

Translations: The French, Italian, and English versions of the information are translations. In case of doubt, the German version shall prevail.

Informations & Links

Advisors Team & Online form

Your advisory team on topics such as: transportation costs, nutritional advice, financial problems (who to contact), social assistance, care support, and much more……….

We cannot address medical questions. These will not be forwarded.

Please contact your medical team for this.

Lilian Weisbrod
Social services expert

Sabine Herzig
Care expert

Andrea Schäfer
President VNPS

Seraina von Moos
Nephrologist

Aurelia Schnyder
Nephrologist

Anne Dufey – Teso
Nephrologist

Online form for your questions

Below you will find numerous links to aid organizations and further information—these are useful and helpful. If you cannot find the answers you are looking for there, please write to us and we will be happy to advise you. Your questions will usually be answered within 14 days.

We will, of course, treat your inquiries confidentially. Information will only be passed on to third parties, such as social services, with your express written (electronic) consent.

Advice centers & social assistance

Transplantation

Transportation + Transport Service

Addresses for transport + transport services

Further information

Self-help groups / regional groups

A patient story

“My glass is half full – never half empty” – a patient story

By Thomas Hunziker, ADPKD patient, patient representative and foundation board member

With the kind support of (in alphabetical order):