
{"id":1111,"date":"2023-07-03T16:53:36","date_gmt":"2023-07-03T16:53:36","guid":{"rendered":"https:\/\/www.nierenstiftung.ch\/new\/?page_id=1111"},"modified":"2025-12-26T17:21:20","modified_gmt":"2025-12-26T17:21:20","slug":"projets-de-coup-de-coeur","status":"publish","type":"page","link":"https:\/\/www.nierenstiftung.ch\/new\/fr\/projets-de-coup-de-coeur\/","title":{"rendered":"Projets coup de c\u0153ur"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_slider admin_label=&#8221;slide&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#b61650&#8243; button_border_color=&#8221;RGBA(255,255,255,0)&#8221; button_border_radius=&#8221;0px&#8221; button_custom_margin=&#8221;||||false|false&#8221; button_custom_padding=&#8221;|250px|||false|false&#8221; text_orientation=&#8221;right&#8221; content_width=&#8221;100%&#8221; content_max_width=&#8221;1280px&#8221; custom_margin=&#8221;|-50px|||false|false&#8221; custom_padding=&#8221;||400px||false|false&#8221; custom_css_slide_button=&#8221;top:50px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_slide button_text=&#8221;Faites un don&#8221; button_link=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjExMjAifX0=@&#8221; _builder_version=&#8221;4.19.4&#8243; _dynamic_attributes=&#8221;button_link&#8221; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/01\/kinderniere2.jpg&#8221; background_enable_image=&#8221;on&#8221; custom_button=&#8221;on&#8221; button_bg_color=&#8221;#b61650&#8243; button_border_color=&#8221;RGBA(255,255,255,0)&#8221; button_alignment=&#8221;right&#8221; global_colors_info=&#8221;{}&#8221; sticky_transition=&#8221;on&#8221;][\/et_pb_slide][\/et_pb_fullwidth_slider][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;26px||50px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1105px&#8221; custom_margin=&#8221;|auto|80px|auto|false|false&#8221; custom_padding=&#8221;||1px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Herzensprojekte&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#B61650&#8243; text_font_size=&#8221;64px&#8221; text_font_size_tablet=&#8221;64px&#8221; text_font_size_phone=&#8221;43px&#8221; text_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Projets coup de c\u0153ur<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1105px&#8221; custom_margin=&#8221;-48px|auto||auto||&#8221; custom_padding=&#8221;||1px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Wir unterst\u00fctzen von ganzem Herzen auch vielf\u00e4ltige Projekte&#8230;.&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: justify;\">En dehors des projets scientifiques r\u00e9guliers, nous soutenons \u00e9galement des projets &#8220;coup de coeur&#8221;, notamment dans les domaines suivants: information sur la sant\u00e9 r\u00e9nale et promotion de la qualit\u00e9 de vie et de traitement des patients atteints de maladies r\u00e9nales.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f3f3&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/Hands_2024.jpg&#8221; title_text=&#8221;Hands_2024&#8243; admin_label=&#8221;image Untersuchung zu den Fahrtkosten von Dialyse-Patient*innen&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Untersuchung zu den Fahrtkosten von Dialyse-Patient*innen&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; link_option_url=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/PDF_FR_1.pdf&#8221; link_option_url_new_window=&#8221;on&#8221; hover_enabled=&#8221;0&#8243; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h4>Enqu\u00eate<\/h4>\n<h3>D\u00e9pistage, traitement et co\u00fbts de la maladie r\u00e9nale chronique en Suisse<\/h3>\n<p style=\"text-align: justify;\">Une \u00e9tude publi\u00e9e r\u00e9cemment a montr\u00e9 que le d\u00e9pistage pr\u00e9coce de la maladie r\u00e9nale chronique (MRC) en Australie est \u00e9conomiquement tr\u00e8s rentable (b\u00e9n\u00e9fice net de 45 dollars par dollar investi) (1) ! La Fondation suisse du rein finance \u00e0 pr\u00e9sent le projet de recherche susmentionn\u00e9, qui examine que le d\u00e9pistage de l&#8217;IRC et les co\u00fbts de l&#8217;IRC soient \u00e9tudi\u00e9s en Suisse et qui est men\u00e9 par le Dr Michael Stucki et le professeur Simon Wieser \u00e0 l&#8217;Institut d&#8217;\u00e9conomie de la sant\u00e9 WIG de Winterthur de la Haute \u00e9cole zurichoise des sciences appliqu\u00e9es (ZHAW).<\/p>\n<p style=\"text-align: justify;\">Le d\u00e9pistage pr\u00e9coce d&#8217;une maladie r\u00e9nale chronique (MRC) permet souvent de ralentir, voire de stopper sa progression gr\u00e2ce au traitement de facteurs de risque tels que le diab\u00e8te et l&#8217;hypertension art\u00e9rielle&#8230;<\/p>\n<p style=\"text-align: left; color: #ff6600;\">Poursuivre votre lecture<\/p>\n<p>Avec l&#8217;aimable soutien de (par ordre alphab\u00e9tique):<br \/>Astra Zeneca, Baar<br \/>Boehringer Ingelheim, Basel<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Untersuchung Zugang zu teuren nephrologischen Therapien in der Schweiz&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_line_height=&#8221;1.2em&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>Enqu\u00eate<\/h4>\n<h3>Acc\u00e8s aux th\u00e9rapies n\u00e9phrologiques on\u00e9reuses en Suisse<\/h3>\n<p style=\"text-align: justify;\">Les n\u00e9phrologues s\u2019engagent depuis longtemps en faveur d\u2019un acc\u00e8s \u00e9quitable aux soins m\u00e9dicaux et dans la lutte contre la p\u00e9nurie des ressources, en particulier depuis que la transplantation et\/ou la dialyse chronique permettent de survivre avec une maladie r\u00e9nale.<br \/>Toutefois, les progr\u00e8s de la m\u00e9decine sont rapides et des traitements prometteurs ont \u00e9t\u00e9 mis au point ces derni\u00e8res ann\u00e9es pour les patients atteints de pathologies r\u00e9nales. Ils sont en mesure de prot\u00e9ger la fonction r\u00e9nale et, par cons\u00e9quent, de ralentir, et m\u00eame, dans de nombreux cas, de pr\u00e9venir l\u2019apparition d\u2019une dysfonction r\u00e9nale. Toutefois, bon nombre de ces nouveaux m\u00e9dicaments sont co\u00fbteux et, de ce fait, ne sont pas toujours accessibles \u00e0 tous les patients. Par cons\u00e9quent, les n\u00e9phrologues doivent rester vigilants et continue de faire pression pour obtenir un acc\u00e8s \u00e9quitable \u00e0 ces nouvelles th\u00e9rapies on\u00e9reuses.<\/p>\n<p><a class=\"read-more-btn\">Poursuivre votre lecture<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/05\/therapien-1024&#215;683.jpg&#8221; title_text=&#8221;therapien&#8221; admin_label=&#8221;image Untersuchung Zugang zu teuren nephrologischen Therapien in der Schweiz&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"more\" style=\"text-align: justify;\">\n<p>Les n\u00e9phrologues s\u2019engagent depuis longtemps pour un acc\u00e8s \u00e9quitable aux soins m\u00e9dicaux ainsi que dans la lutte contre la p\u00e9nurie de ressources, en particulier depuis que la transplantation et la dialyse chronique sont devenues des options th\u00e9rapeutiques. La m\u00e9decine progresse \u00e0 grands pas et propose de nombreux traitements prometteurs capables de prot\u00e9ger la fonction r\u00e9nale des patients atteints de maladies r\u00e9nales. Un grand nombre de ces nouveaux m\u00e9dicaments sont toutefois tr\u00e8s co\u00fbteux et ne sont, de ce fait, pas accessibles \u00e0 tous les patients. Les n\u00e9phrologues doivent par cons\u00e9quent \u00e0 nouveau monter au cr\u00e9neau pour un acc\u00e8s plus \u00e9quitable \u00e0 ces nouveaux traitements on\u00e9reux.<\/p>\n<p>En Suisse, les cliniciens souhaitant prescrire un traitement on\u00e9reux doivent obtenir au pr\u00e9alable l\u2019accord de la caisse-maladie. Ces d\u00e9marches prennent du temps et n\u00e9cessitent souvent plusieurs demandes avant d\u2019obtenir une autorisation ou un refus du traitement. Ce type de retard peut faire perdre un temps pr\u00e9cieux dans la mise en place du traitement et entra\u00eener la perte de la fonction r\u00e9nale du patient. Lorsqu\u2019un m\u00e9dicament co\u00fbteux est refus\u00e9, le patient peut d\u00e9cider de\u00a0 le payer de sa poche ou entamer une proc\u00e9dure juridique; toutefois les co\u00fbts sont bien souvent beaucoup trop \u00e9lev\u00e9s pour faire les deux en parall\u00e8le. Qui plus est, les d\u00e9cisions des assureurs maladie ne sont pas transparentes et peuvent diverger d\u2019un patient \u00e0 l\u2019autre, m\u00eame s\u2019ils pr\u00e9sentent des pathologies similaires. Elles peuvent \u00e9galement diff\u00e9rer d\u2019un assureur maladie \u00e0 l\u2019autre et il est g\u00e9n\u00e9ralement impossible d\u2019en discuter directement avec les d\u00e9cideurs de l\u2019assurance-maladie. Il arrive donc que l\u2019acc\u00e8s \u00e0 ces m\u00e9dicaments on\u00e9reux soit accord\u00e9 ou refus\u00e9 pour des patients pr\u00e9sentant les m\u00eames besoins.<br \/>L\u2019acc\u00e8s \u00e0 ces traitements de n\u00e9phrologie co\u00fbteux en Suisse soul\u00e8vent de nombreuses questions. A-t-on souvent besoin de ce type de m\u00e9dicaments? La prise en charge des co\u00fbts est-elle g\u00e9n\u00e9ralement accept\u00e9e ou refus\u00e9e? Si elle est accept\u00e9e, quels sont les co\u00fbts et comment sontils r\u00e9partis (au prorata)? Tous les patients ont-ils les m\u00eames chances de recevoir ce traitement? Ces traitements sont-ils utilis\u00e9s de mani\u00e8re ad\u00e9quate et font-ils l\u2019objet d\u2019une surveillance afin d\u2019en constater l\u2019utilit\u00e9? Les prix de ces m\u00e9dicaments sont-ils justifi\u00e9s?<br \/>Comment est la situation en Suisse par rapport aux autres pays d\u2019Europe? Avec notre projet de recherche, nous voulons rendre plus transparente la situation actuelle en<br \/>termes de besoin, d\u2019utilisation et d\u2019acc\u00e8s aux m\u00e9dicaments co\u00fbteux pour les patients souffrant d\u2019affections r\u00e9nales, afin de mieux comprendre les obstacles et les processus d\u00e9cisionnels. L\u2019objectif est de cr\u00e9er un cadre pour la d\u00e9fense des int\u00e9r\u00eats des patients concernant l\u2019acc\u00e8s aux traitements de n\u00e9phrologie co\u00fbteux, de garantir la transparence des co\u00fbts et des tarifs et de garantir que les besoins cliniques de tous les patients puissent \u00eatre satisfaits.<\/p>\n<hr \/>\n<p>La Fondation Suisse du Rein soutient ce projet important et int\u00e9ressant depuis 2021.<\/p>\n<p>2022\u00a0: Point de vue des n\u00e9phrologues suisses concernant l&#8217;acc\u00e8s aux th\u00e9rapies nouvelles\/co\u00fbteuses pour les patients r\u00e9naux (<a href=\"https:\/\/www.nierenstiftung.ch\/wp\/wp-content\/uploads\/2022\/12\/2022.12.08_Poster_SGN_LuyckxV.pdf\" target=\"_blank\" rel=\"noopener\"><strong>affiche au congr\u00e8s du SGN, d\u00e9cembre 2022<\/strong><\/a>)<\/p>\n<blockquote>\n<p>Dr. med Valerie A. Luyckx MD, MSc, PhD<br \/>PD Dr. med. Giuseppina Spart\u00e0, eMBA<br \/>Prof. Dr. med Thomas F. Mueller MD<br \/>Institute of Biomedical Ethics and the History of Medicine, University of Zurich, Winterthurerstrasse 30, 8006 Zurich<\/p>\n<\/blockquote>\n<p><strong>2024:<\/strong> <a href=\"https:\/\/journals.lww.com\/kidney360\/pages\/articleviewer.aspx?year=9900&amp;issue=00000&amp;article=00437&amp;type=Abstract\" target=\"_blank\" rel=\"noopener\">Access to expensive therapies and diagnostics for kidney care in Switzerland (PAP)<\/a><br \/>Kidney360 ():10.34067\/KID.0000000000000522, July 19, 2024. | DOI: 10.34067\/KID.0000000000000522<br \/>_______________________________________________________________________________________________________________________________________________________________________<br \/><strong>Communiqu\u00e9 de presse septembre 2024<\/strong><br \/><a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/09\/2024_Communique-de-presse_final_09-2024.pdf\" target=\"_blank\" rel=\"noopener\">L&#8217;in\u00e9galit\u00e9 de financement de nouveaux traitements pour les reins retarde la mise en place de traitements critiques<\/a><\/p>\n<p><strong><a href=\"https:\/\/www.rts.ch\/audio-podcast\/2024\/audio\/ici-la-suisse-les-personnes-souffrant-de-problemes-renaux-peinent-a-se-faire-rembourser-28725099.html\" target=\"_blank\" rel=\"noopener\">La Matinale &#8211; RTS &#8211; 12.12.2024 \/ audio-podcast<\/a><br \/><\/strong>Ici la Suisse &#8211; Les personnes souffrant de probl\u00e8mes r\u00e9naux peinent \u00e0 se faire rembourser<\/p>\n<p><a href=\"https:\/\/www.nierenstiftung.ch\/new\/herzensprojekte\/\" target=\"_blank\" rel=\"noopener\">Pour plus de renseignements, veuillez consulter le site allemand<\/a><\/p>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f3f3&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/05\/dialyse-1024&#215;682.jpg&#8221; title_text=&#8221;dialyse&#8221; admin_label=&#8221;image Untersuchung zu den Fahrtkosten von Dialyse-Patient*innen&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Untersuchung zu den Fahrtkosten von Dialyse-Patient*innen&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>Enqu\u00eate<\/h4>\n<h3>Enqu\u00eate sur les frais de d\u00e9placement des patients dialys\u00e9s<\/h3>\n<p><strong>Enqu\u00eate sur les frais de d\u00e9placement des patients dialys\u00e9s \u2013 quel est l\u2019impact financier et social de ces frais ?<br \/><\/strong>Les patients* souffrant d\u2019une maladie r\u00e9nale chronique doivent souvent se soumettre \u00e0 un traitement par dialyse. Il existe deux techniques principales pour cela, l\u2019h\u00e9modialyse (purification directe du sang) ou la dialyse p\u00e9riton\u00e9ale (dialyse dans le ventre). Les h\u00e9modialyses sont g\u00e9n\u00e9ralement effectu\u00e9es dans des centres sp\u00e9cialis\u00e9s et les patients\u00a0 doivent s&#8217;y rendre plusieurs fois par semaine. Pour tous ceux qui n\u2019habitent pas \u00e0 proximit\u00e9 imm\u00e9diate d\u2019un tel centre \u00e7a repr\u00e9sente de nombreux trajets dont les co\u00fbts ne sont qu\u2019insuffisamment pris en charge par les caisses maladies.<\/p>\n<p style=\"text-align: left;\">Cette \u00e9tude examine l\u2019impact de ces frais de d\u00e9placement sur les patients et leurs familles.<br \/>2022 | Kai-Uwe Schmitt, Bern<br \/><a href=\"https:\/\/www.mdpi.com\/2227-9032\/12\/24\/2513\" target=\"_blank\" rel=\"noopener\">2024 | The Socioeconomic Impact of Transport Costs for Adult Patients Requiring Haemodialysis: A Mixed Methods Study Healthcare 2024, 12,2513<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Weltnierentag 2023 Eine Niere reicht, um ein Leben zu retten&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>La journ\u00e9e mondiale du rein 202<\/h4>\n<h3>Un rein suffit pour sauver une vie<\/h3>\n<p>Dessinant un rein g\u00e9ant avec des fleurs, 50 personnes atteintes d\u2019une pathologie r\u00e9nale et leurs proches ont plant\u00e9 le 9 mars quelque 500 plantes en pot dans un parterre devant l\u2019h\u00f4pital universitaire de Zurich.<\/p>\n<p><a href=\"https:\/\/www.usz.ch\/nierenkranke-pflanzen-grosse-blumen-niere\/\" target=\"_blank\" rel=\"noopener\">Elles ont ainsi donn\u00e9 un signal fort en faveur de la transplantation r\u00e9nale.<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/04\/0006-ANZ_1069.jpg&#8221; title_text=&#8221;0006-ANZ_1069&#8243; admin_label=&#8221;image Weltnierentag 2023 Eine Niere reicht, um ein Leben zu retten&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f3f3&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/01\/kinderniere2.jpg&#8221; title_text=&#8221;kinderniere2&#8243; admin_label=&#8221;image Unterst\u00fctzung Schweizer Lager f\u00fcr nierenkranke Kinder&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Unterst\u00fctzung Schweizer Lager f\u00fcr nierenkranke Kinder&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>Soutien<\/h4>\n<h3>Camp de vacances suisse pour enfants souffrant de maladies r\u00e9nales<\/h3>\n<p>Il y a plus de trente ans, le premier <a href=\"https:\/\/www.kispi.uzh.ch\/kinderspital\/news\/nierenkranke-kinder-im-ferienlager\" target=\"_blank\" rel=\"noopener\"><strong>camp de vacances<\/strong><\/a> d\u00e9di\u00e9 aux enfants atteints de maladies r\u00e9nales et \u00e0 leurs fr\u00e8res et s\u0153urs \u00e9tait cr\u00e9\u00e9 en Suisse. Ce camp est organis\u00e9 depuis toujours par le service des maladies r\u00e9nales de l\u2019h\u00f4pital p\u00e9diatrique de Zurich. Gr\u00e2ce \u00e0 ce camp d\u2019\u00e9t\u00e9, les enfants et adolescents malades ont la possibilit\u00e9 d\u2019\u00e9changer ensemble et leurs familles sont quelque peu d\u00e9lest\u00e9es pendant une semaine.<\/p>\n<p>La Fondation Suisse du Rein soutient ce projet depuis 2021.<\/p>\n<p>En juillet 2022, le camp a eu lieu \u00e0 Weggis (<strong><a href=\"Lesen%20Sie den Bericht 2022\" target=\"_blank\" rel=\"noopener\">Lisez le rapport 2022<\/a><\/strong>).<a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/04\/Bericht_KinderLager_2022-1.pdf\" rel=\"attachment wp-att-716\"><\/a><\/p>\n<p><span lang=\"FR\">Le camp de cette ann\u00e9e a de nouveau eu lieu \u00e0 Weggis\/Lucerne du 16.7 au 22.7.2023.\u00a0<br \/><\/span><span>(<a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/08\/ferienlager2023.pdf\" target=\"_blank\" rel=\"noopener\"><strong>Lisez le rapport 2023<\/strong><\/a>)<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Fachtagung Fachtagung f\u00fcr nephrologische Pflege&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>\u00a0<\/h4>\n<h3>Congr\u00e8s<\/h3>\n<p>Le groupe d&#8217;int\u00e9r\u00eat pour les soins n\u00e9phrologiques (<a href=\"http:\/\/www.ig-nephrologie.ch\/\" target=\"_blank\" rel=\"noopener\">IG-Nephrologie)<\/a> a \u00e9t\u00e9 fond\u00e9 en mai 1989 par quelques infirmi\u00e8res engag\u00e9es. Le r\u00e8glement a \u00e9t\u00e9 approuv\u00e9 par l&#8217;association centrale de l&#8217;<a href=\"https:\/\/www.sbk-be.ch\/de\/index.html\" target=\"_blank\" rel=\"noopener\">ASI\/ASK<\/a> en 1990. Aujourd&#8217;hui, la majorit\u00e9 des membres sont des infirmi\u00e8res de diff\u00e9rents services de dialyse de Suisse al\u00e9manique.<br \/>L&#8217;objectif est d&#8217;int\u00e9grer de nouvelles connaissances dans les soins infirmiers gr\u00e2ce \u00e0 l&#8217;\u00e9change avec les coll\u00e8gues et de permettre ainsi une am\u00e9lioration de la qualit\u00e9 dans le quotidien clinique.<\/p>\n<p>Depuis des ann\u00e9es, IG-Nephrologie organise des congr\u00e8s sp\u00e9cialis\u00e9s. Depuis plusieurs ann\u00e9es, celles-ci sont soutenues par la Fondation suisse du rein.<\/p>\n<ul class=\"et_post_gallery clearfix\">\r\n\t\t\t\t\t<li class=\"et_gallery_item et_pb_gallery_image\">\r\n\t\t\t\t\t\t<a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/9-Aussteller-Grandi.jpg\" title=\"9\u00a0Aussteller (Grandi)\">\r\n\t\t\t\t\t\t\t<span class=\"et_portfolio_image\">\r\n\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"284\" src=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/9-Aussteller-Grandi-400x284.jpg\" class=\"attachment-et-pb-portfolio-image size-et-pb-portfolio-image\" alt=\"\" \/>\r\n\t\t\t\t\t\t\t\t<span class=\"et_overlay\"><\/span>\r\n\t\t\t\t\t\t\t<\/span>\r\n\t\t\t\t\t\t<\/a>\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t<\/li><li class=\"et_gallery_item et_pb_gallery_image\">\r\n\t\t\t\t\t\t<a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/8-Beisammensein-Grandi.jpg\" title=\"8\u00a0Beisammensein (Grandi)\">\r\n\t\t\t\t\t\t\t<span class=\"et_portfolio_image\">\r\n\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"284\" src=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/8-Beisammensein-Grandi-400x284.jpg\" class=\"attachment-et-pb-portfolio-image size-et-pb-portfolio-image\" alt=\"\" \/>\r\n\t\t\t\t\t\t\t\t<span class=\"et_overlay\"><\/span>\r\n\t\t\t\t\t\t\t<\/span>\r\n\t\t\t\t\t\t<\/a>\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t<\/li><li class=\"et_gallery_item et_pb_gallery_image\">\r\n\t\t\t\t\t\t<a href=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/7-Frauenpower-Grandi.jpg\" title=\"7\u00a0Frauenpower (Grandi)\">\r\n\t\t\t\t\t\t\t<span class=\"et_portfolio_image\">\r\n\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"284\" src=\"https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/7-Frauenpower-Grandi-400x284.jpg\" class=\"attachment-et-pb-portfolio-image size-et-pb-portfolio-image\" alt=\"\" \/>\r\n\t\t\t\t\t\t\t\t<span class=\"et_overlay\"><\/span>\r\n\t\t\t\t\t\t\t<\/span>\r\n\t\t\t\t\t\t<\/a>\r\n\t\t\t\t\t\t\r\n\t\t\t\t\t<\/li>\r\n\t\t\t\t<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/11\/2-gespannte-Blicke-in-vollen-Reihen-Grandi-1024&#215;683.jpg&#8221; title_text=&#8221;2 gespannte Blicke in vollen Reihen (Grandi)&#8221; admin_label=&#8221;image Fachtagung Fachtagung f\u00fcr nephrologische Pflege&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f3f3f3&#8243; background_enable_image=&#8221;off&#8221; background_size=&#8221;custom&#8221; background_image_height=&#8221;141%&#8221; background_position=&#8221;top_left&#8221; custom_padding=&#8221;2px||2px|||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; custom_padding=&#8221;31px|||||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_position=&#8221;top_left&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2023\/12\/467_2023_6216_Fig1_HTML.jpg&#8221; title_text=&#8221;467_2023_6216_Fig1_HTML&#8221; admin_label=&#8221;image Untersuchung Zugang zu teuren nephrologischen Therapien in der Schweiz&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;RGBA(255,255,255,0)&#8221; background_enable_image=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Untersuchung Zugang zu teuren nephrologischen Therapien in der Schweiz&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;13px&#8221; header_line_height=&#8221;1.2em&#8221; header_3_font=&#8221;|600|||||||&#8221; header_3_text_color=&#8221;#EE7203&#8243; header_3_font_size=&#8221;28px&#8221; header_3_line_height=&#8221;1.2em&#8221; header_4_font=&#8221;Rasa||||||||&#8221; header_4_font_size=&#8221;27px&#8221; header_3_font_size_tablet=&#8221;28px&#8221; header_3_font_size_phone=&#8221;28px&#8221; header_3_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>Enqu\u00eate<\/h4>\n<h3>Eculizumab in Shiga toxin-producing Escherichia coli hemolytic uremic syndrome: a systematic review<\/h3>\n<p style=\"text-align: justify;\">de Zwart, P.L., Mueller, T.F., Spart\u00e0, G. et al.<\/p>\n<p style=\"text-align: justify;\"><span>Pediatr Nephrol (2023).<\/span><\/p>\n<p><a href=\"https:\/\/doi.org\/10.1007\/s00467-023-06216-1\" target=\"_blank\" rel=\"noopener\">https:\/\/doi.org\/10.1007\/s00467-023-06216-1<\/a> (English only)<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"more\" style=\"text-align: justify;\">\n<p>Klinikerinnen und Kliniker in der Schweiz, die eine teure Therapie verschreiben wollen, m\u00fcssen vor der Anwendung die Genehmigung der Krankenkasse einholen. Diese Antr\u00e4ge nehmen Zeit in Anspruch und erfordern oft mehrere Antr\u00e4ge bevor eine Therapie genehmigt oder abgelehnt wird. Solche Verz\u00f6gerungen k\u00f6nnen dazu f\u00fchren, dass wertvolle Zeit in der Behandlung f\u00fcr einen Patienten und seine Nierenfunktion verloren geht. Wenn ein teures Medikament abgelehnt wird, kann sich der Patient entscheiden, aus eigener Tasche zu bezahlen oder einen Rechtsbehelf einzulegen, aber die Kosten f\u00fcr Beides sind oft unerschwinglich. Dar\u00fcber hinaus sind die Entscheidungen der Krankenversicherer nicht transparent, sind m\u00f6glicherweise bei zwei Patienten mit \u00e4hnlichen Krankheiten nicht gleich, k\u00f6nnen sich zwischen den Krankenversicherungen unterscheiden und k\u00f6nnen h\u00e4ufig nicht direkt mit den Entscheidungstr\u00e4gern bei der Krankenversicherungen besprochen werden. Es ist deshalb m\u00f6glich, dass der Zugang zu diesen teuren Medikamenten f\u00fcr Patienten mit \u00e4hnlichen Bed\u00fcrfnissen ungleich sein kann. Es sind viele Fragen offen bez\u00fcglich des Zugangs zu diesen teuren Therapien in der Nephrologie in der Schweiz: Wie oft werden solche Medikamente ben\u00f6tigt? Wie oft wird eine Kosten\u00fcbernahme erreicht oder verweigert? Falls sie zugesagt wird, wie hoch sind die Kosten und wie ist Ihre Bezahlung anteilig verteilt? Haben alle Patientinnen und Patienten die gleichen Chancen, die Therapie zu erhalten? Werden diese Therapien angemessen eingesetzt und \u00fcberwacht um den Nutzen zu pr\u00fcfenfestzustellen? Wie fair sind die Preise f\u00fcr diese Medikamente? Wie fair ist die Situation in der Schweiz im Vergleich zu anderen L\u00e4ndern in Europa? Mit unserem Forschungsprojekt m\u00f6chten wir die gegenw\u00e4rtige Situation bez\u00fcglich Bedarf, Anwendung und Zugang zu teuren Medikamenten f\u00fcr nierenkranke Patienten transparenter machen um die Barrieren und die Entscheidungsprozesse besser zu verstehen. Ziel ist es, einen Rahmen f\u00fcr die Interessensvertretung im Hinblick auf den Zugang zu teuren Therapien in der Nephrologie zu entwickeln, Transparenz \u00fcber Kosten und Preisgestaltung zu erreichen und damit sicherzustellen, dass die klinischen Bed\u00fcrfnisse aller Patienten gerecht erf\u00fcllt werden.<\/p>\n<hr \/>\n<p>Seit 2021 unterst\u00fctzt die Schweizerische Nierenstiftung dieses wichtige und interessante Projekt.<\/p>\n<p><strong>2022<\/strong>: Standpunkt von Schweizer Nephrologen bez\u00fcglich Zugang zu neuen\/ teuren Therapien f\u00fcr Nierenpatienten\u00a0<a href=\"https:\/\/www.nierenstiftung.ch\/wp\/wp-content\/uploads\/2022\/12\/2022.12.08_Poster_SGN_LuyckxV.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">(Poster am SGN Kongress, Dezember 2022)<\/a><\/p>\n<blockquote>\n<p>Dr. med Valerie A. Luyckx MD, MSc, PhD<br \/>PD Dr. med. Giuseppina Spart\u00e0, eMBA<br \/>Prof. Dr. med Thomas F. Mueller MD<br \/>Institute of Biomedical Ethics and the History of Medicine, University of Zurich, Winterthurerstrasse 30, 8006 Zurich<\/p>\n<\/blockquote>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Download Unterst\u00fctzungsantrag&#8221; module_id=&#8221;#download&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; custom_padding=&#8221;26px||50px|||&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1105px&#8221; custom_margin=&#8221;|auto|45px|auto|false|false&#8221; custom_padding=&#8221;||1px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Formular f\u00fcr Unterst\u00fctzungsantrag downloaden&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#EE7203&#8243; text_font_size=&#8221;37px&#8221; text_line_height=&#8221;1.1em&#8221; text_font_size_tablet=&#8221;64px&#8221; text_font_size_phone=&#8221;26px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>T\u00e9l\u00e9charger le formulaire de demande de soutien<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; max_width=&#8221;1105px&#8221; custom_margin=&#8221;-48px|auto||auto||&#8221; custom_padding=&#8221;||1px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#B61650&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Gesuche bis 10\u2019000.&#8211;&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;25px&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>Applications jusqu&#8217;\u00e0 10\u2019000.&#8211;<\/span><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/FR_01_Formulaire_de_Demande_SNS_v2025_bis_10.000.docx&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Formulaire&#8221; button_alignment=&#8221;center&#8221; admin_label=&#8221;Formular downloaden&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;18px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#EE7203&#8243; button_icon=&#8221;&#xe03a;||divi||400&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; custom_margin=&#8221;||20px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;min-width:270px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][et_pb_button button_url=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/01_FR_Directives_SNS_v2025_bis_10.000.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Directives&#8221; button_alignment=&#8221;center&#8221; admin_label=&#8221;Richtlinien downloaden&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;18px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#EE7203&#8243; button_icon=&#8221;&#xe03a;||divi||400&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; custom_margin=&#8221;||20px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;min-width:270px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#EE7203&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Gesuche ab 10\u2019000.&#8211;&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700|||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;25px&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px|20px|20px|20px|false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>Application \u00e0 partir de 10\u2019000.&#8211;<\/span><\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/FR_02_Formulaire_de_Demande_SNS_v2025_ab_10.000.docx&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Formulaire&#8221; button_alignment=&#8221;center&#8221; admin_label=&#8221;Formular downloaden&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;18px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#B61650&#8243; button_icon=&#8221;&#xe03a;||divi||400&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; custom_margin=&#8221;||20px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;min-width:270px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][et_pb_button button_url=&#8221;https:\/\/www.nierenstiftung.ch\/new\/wp-content\/uploads\/2024\/12\/02_FR_Directives_SNS_v2025_ab_10.000.pdf&#8221; url_new_window=&#8221;on&#8221; button_text=&#8221;Directives&#8221; button_alignment=&#8221;center&#8221; admin_label=&#8221;Richtlinien downloaden&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;18px&#8221; button_text_color=&#8221;#FFFFFF&#8221; button_bg_color=&#8221;#B61650&#8243; button_icon=&#8221;&#xe03a;||divi||400&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; custom_margin=&#8221;||20px||false|false&#8221; custom_padding=&#8221;||||false|false&#8221; custom_css_main_element=&#8221;min-width:270px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#B61650&#8243; custom_padding=&#8221;18px||2px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;-13px|auto||auto||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;\u00abGemeinsam zu lachen bewirkt Gutes.\u00bb&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;Rasa||||||||&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_font_size=&#8221;46px&#8221; text_line_height=&#8221;1em&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;0px|||||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>\u00abLa sant\u00e9 est un cadeau qui n&#8217;est pas offert \u00e0 tous\u00bb<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Pandora Kunz, Mitglied Stiftungsrat&#8221; _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#FFFFFF&#8221; text_orientation=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Ulrich H\u00e4nsenberger, <span>Membre du Conseil de Fondation<\/span><\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.19.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<script><!-- [et_pb_line_break_holder] -->moreText = document.querySelector('.more'),<!-- [et_pb_line_break_holder] -->btnText = document.querySelector('.read-more-btn');<!-- [et_pb_line_break_holder] -->btnText.onclick = function(){<!-- [et_pb_line_break_holder] -->                if (moreText.style.display === \"inline\") {<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->                    btnText.innerHTML = \"Continuez votre lecture\";<!-- [et_pb_line_break_holder] -->                    moreText.style.display = \"none\";<!-- [et_pb_line_break_holder] -->                } else {<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->                    btnText.innerHTML = \"Lire moins\";<!-- [et_pb_line_break_holder] -->                    moreText.style.display = \"inline\";<!-- [et_pb_line_break_holder] -->                }<!-- [et_pb_line_break_holder] -->            }<!-- [et_pb_line_break_holder] --><\/script>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; 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     <!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->    break;<!-- [et_pb_line_break_holder] -->  case \"IT\":<!-- [et_pb_line_break_holder] -->  document.getElementById(\"vnps\").innerHTML = \"Sulla strada insieme con l\u2019Associazione svizzera per pazienti d\u2019insufficienza renale (ASPIR)\";<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->    break;<!-- [et_pb_line_break_holder] -->  case \"GB\":<!-- [et_pb_line_break_holder] -->document.getElementById(\"vnps\").innerHTML = \"Together on the road with the Swiss Kidney Patients Association (SKPA)\";<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->    break;<!-- [et_pb_line_break_holder] -->\tcase \"FR\":<!-- [et_pb_line_break_holder] -->  document.getElementById(\"vnps\").innerHTML = \"En route ensemble avec la Soci\u00e9t\u00e9 suisse des patients insuffisants r\u00e9naux (SSPIR)\";<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->    break;<!-- [et_pb_line_break_holder] -->  default:<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->\tdocument.getElementById(\"vnps\").innerHTML = \"Gemeinsam unterwegs mit dem Verband Nierenpatienten Schweiz (VNPS)\";<!-- [et_pb_line_break_holder] --><!-- [et_pb_line_break_holder] -->}<!-- [et_pb_line_break_holder] --> <!-- [et_pb_line_break_holder] --><\/script>[\/et_pb_code][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; 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